Top 10 Dysautonomia Blogs and Websites To Follow in 2021
1. Dysautonomia Support
US A U.S. based, non-profit organization providing support, resources, edification and advocacy for patients affected by the many forms of Dysautonomia and related conditions such as Connective Tissue Disorders, Mast Cell Activation Disorders, Chiari Malformation, and Gastric Motility Disorders. Since Feb 2016 Also in Chronic Illness Blogs dysautonomiasupport.org/blog
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2. Dysautonomia Today
Dysautonomia Today provides educational and informative content for those with dysautonomic conditions such as POTS, EDS, MCAS, MSA, and more. Frequency 4 posts / year dysautonomiatoday.com
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3. Dysautonomia Center NYU
The Dysautonomia Center at NYU Langone Medical Center brings together physicians, researchers and nursing staff to focus on the research and treatment of autonomic disorders in children and adults. Learn more about the latest in autonomic research and education. Frequency 1 post / week Since Aug 2015 dysautonomiacenter.com
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4. Dysautonomia International | The Dysautonomia Dispatch
Moriches, New York, US Dysautonomia International is a non-profit organization that seeks to improve the lives of individuals living with autonomic nervous system disorders through research, physician education, public awareness, and patient empowerment programs. Frequency 1 post / month Since Dec 2013 dysautonomiainternational.or..
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5. Familial Dysautonomia
Buffalo Grove, Illinois, US FD NOW, founded by The Slaw Family, supports research that will drive better treatments and cures for patients with FD. Our goal is to deliver the next safe, natural substance to the FD community, provide support to FD families and promote education and awareness to the medical community and public. Frequency 1 post / year fdnow.org/blog
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6. Living with Bob (Dysautonomia)
Victoria, Australia Living with Bob is about finding the funny when faced with the absurd and disheartening world of chronic illness. It doesn’t take life too seriously, instead choosing to face the crapfest that is my health with a large dose of black humor. There may be the occasional piece of useful medical information, but you are far more likely to encounter lengthy descriptions of my bowel habits. Since Jul 2009 bobisdysautonomia.blogspot.com
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